The common but little-known virus causing disability in hundreds of babies

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It was a sheet smashing connected the room level that archetypal alerted Catherine Bradshaw that thing was amiss with her six-month-old daughter, Kirsten.

“She didn’t react,” Bradshaw recalled.

Catherine Bradshaw with hubby  Jarrod Gorman and girl  Kirsten.

Catherine Bradshaw with hubby Jarrod Gorman and girl Kirsten.Credit: Luis Enrique Ascui

The acrophobic household took Kirsten to a proceeding session wherever she was diagnosed with profound deafness. Four months later, aft Kirsten failed to conscionable milestones including holding up her head, she was diagnosed with cerebral palsy.

In their quest for answers, doctors pored implicit Kirsten’s newborn humor spot screening paper and discovered she was calved with cytomegalovirus, oregon CMV, a communal but poorly understood microorganism that causes astir 400 Australian babies to beryllium calved with carnal oregon intelligence disabilities each year.

The disabilities see deafness, blindness, cerebral palsy, epilepsy and intelligence impairment.

In an Australian-first study, large women astatine the Mercy Hospital for Women successful Melbourne’s north-east are being tested to spot if they are astatine heightened hazard of catching CMV and passing it onto their unborn babies.

A fewer  drops of humor  are taken for the newborn screening test.

A fewer drops of humor are taken for the newborn screening test.Credit: Angela Wylie

Those astatine top hazard are women who attraction for oregon enactment with toddlers and who haven’t been antecedently infected with the virus, which 85 per cent of the colonisation is estimated to declaration astatine immoderate constituent successful their life.

The microorganism is peculiarly prevalent successful daycare and spreads via bodily fluid specified arsenic saliva, mucous and urine.

As portion of the study, women who person not had a anterior CMV corruption volition beryllium offered different humor trial astatine the extremity of their archetypal trimester. If a caller corruption is detected, antiviral medicine volition beryllium offered to little the hazard of the microorganism being passed onto the unborn baby.

“We bash a humor trial due to the fact that women don’t usually person immoderate symptoms erstwhile they drawback it,” explains Professor Lisa Hui, a maternal fetal medicine specializer progressive successful the study.

The women person accusation connected however to debar catching the virus, which includes not sharing nutrient with toddlers, not kissing children connected the lips and washing their hands aft changing nappies oregon wiping noses.

This is proposal that each large women are recommended to follow, careless of whether they person been infected with the microorganism before. This is due to the fact that they tin beryllium reinfected with a caller strain.

These precautions were not shared with Bradshaw erstwhile she became large with Kirsten successful 2006.

“We are fixed a database of each the foods to avoid,” the Torquay parent said. “But determination was nary acquisition connected this.”

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Kirsten is present 17 and uses a wheelchair, has progressive lung disease, is fed via a conduit that goes into her tummy and has undergone 16 operations.

She uses a machine to pass with household and friends, has a cheeky consciousness of humour and loves AFL squad Geelong and the ocean.

“We are astatine a signifier wherever determination is thing we tin bash to marque her lungs better. We are conscionable supporting her done that and making her comfortable. We are enjoying her portion we’ve inactive got her,” Bradshaw said.

For the archetypal time, new European guidelines recommend that each large women are tested for grounds of anterior CMV infection.

In Australia, screening is considered lone for large women who attraction for young children, but the Royal Australian and New Zealand College of Obstetricians and Gynaecologists is reviewing its guidelines.

A national Health Department spokeswoman said its gestation attraction guidelines were besides being updated and would see the latest grounds erstwhile it came to communicable diseases specified arsenic CMV.

Dr Hayley Smithers-Sheedy, an subordinate prof astatine the Cerebral Palsy Alliance Research Institute astatine the University of Sydney, said 10 per cent of children with cerebral palsy had signs of a CMV corruption from their newborn screening card.

Smithers-Sheedy, who is spearheading an consciousness run on with the CMV Association, said galore GPs, obstetricians and midwives did not routinely sermon the hazard of the microorganism with large women.

“They person truthful overmuch to archer women about, and truthful galore patients to look after,” she said. “I deliberation CMV has conscionable not chopped through. We’re trying to alteration that.”

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